When a heart from a deceased donor is available, Life Center Northwest, the organ procurement organization in the Pacific Northwest region, will call your transplant nurse coordinator.
Both a nurse coordinator and a transplant surgeon are on call 24 hours a day. The coordinator will call the transplant surgeon to discuss the history and condition of the donor to determine if this donor organ would be best match for your child.
If the organ is a good match, the transplant nurse coordinator will contact you to see if your child is able to undergo the transplantation operation. The coordinator must make sure that your child does not have any new health problems that require delaying transplantation.
Current UNOS policy requires that the transplant center (Life Center Northwest) make a decision to accept or turn down the organ within ONE HOUR.
We will make every effort to contact you. We will first call your home number. Then we will page you. You must answer all pages that come, even if you do not recognize the number. The number may be the coordinator’s home or cell phone number.
We must also have a list of contacts (family, friends, work, school, etc.) to call. We may call the local police to help find you.
When we contact you, the coordinator will discuss:
If we are unable to contact you within that hour, a very important opportunity for transplant will be missed. The heart will be offered to the next person on the list, and your child will remain on the waiting list.
At the hospital, your child will have blood tests and a chest X-ray to make sure her condition is stable enough for surgery.
We will start an intravenous (IV) line to give medicines and fluids. An IV is a small needle inserted into your child’s arm so that we can easily inject medicines and fluids into a vein.
The time of your child’s operation is planned to match the heart’s arrival at Children’s. The heart cannot live long outside a body so the heart must be removed from the donor, transported to Children’s and then transplanted into your child within a few hours.
You may stay with your child until the anesthesiologist has put her to sleep. Then your child will be taken to the operating room.
At that time, you can check in at the Cardiac Intensive Care Unit (CICU) front desk. There, you will be given a pager, so that operating room staff can let you know how your child is doing during the surgery.
There are many places for you to wait at the hospital during your child’s surgery, including the hospital cafeteria, the chapel, the Family Resource Center and family waiting rooms in the CICU and near the operating room.
Once your child is asleep under anesthesia, he will be put on cardiopulmonary bypass (heart-lung machine) in order to maintain circulation throughout the body while the damaged heart is removed and the new, healthy heart is connected.
For children with complex congenital heart disease, especially those who have had prior heart surgeries, the operation can be more involved.
The operating room staff will let you know how your child is doing during the surgery. They will contact you through the pager you picked up from the CICU.
After surgery, your child will go to the CICU. You will be able to be with your child there.
Here are some of the things you may see attached to your child in the CICU:
Preparing and Waiting for a Heart Transplant | After Heart Transplant