Kidney Transplant Resources
Children’s wants you to have all the information you need to understand your child’s kidney disorder.
Useful links
American Association of Kidney Patients
Helps kidney patients and their families deal with the physical, emotional and social impact of kidney disease. The site has resources for dialysis and transplant patients, as well as information about public programs that help kidney patients meet their financial and personal needs.
American Kidney Fund
Provides direct financial assistance to kidney patients in need, and education for people with kidney disease or at risk for it. In 2004, the fund served more than 55,000 low-income kidney patients, distributing more than 100,000 grants totaling $57 million.
American Society of Pediatric Nephrology
Provides many fact sheets plus resources for parents of children with chronic kidney disease. The site has many links, including Web sites for general and disease-specific information, e-mail discussion groups, renal transplant information and information about transitioning to adulthood and adult specialty care.
National Kidney Foundation
Information about transplant and kidney diseases and a whole section dedicated to parents and children.
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
Information dissemination service connected to the National Institutes of Health, a program under the U.S. Department of Health and Human Services. The site has information about current clinical trials that are recruiting patients, as well as statistics and information about kidney diseases.
Transplant Patient Partnering Program - Kidney
A unique site that gives a realistic view of the transplant experience. The site includes good information about making the transplant decision, how to talk to potential living donors and what happens before, during and after transplantation.
Recommended reading
Many books can be checked out from the Family Resource Center at Children’s or found at your local library or bookstore.
The Inside Story: A Kid’s Guide to Kidney and Liver Transplants
Karen Crowe
This guide is written to educate kids on what to expect before and after surgery.