Liver Transplant Resources
Children’s wants you to have all the information you need to understand your child’s liver disorder.
Useful links
American Liver Foundation
Features information about liver diseases, treatment, research and patient stories.
Children’s Liver Association for Support Services
Provides information, support and services to families coping with pediatric liver disease and transplant. The site has a library with descriptions of liver diseases and treatments, including biliary atresia and cirrhosis.
Latino Organization for Liver Awareness (LOLA)
Provides information in Spanish and English on liver transplant and has good frequently asked questions about organ and tissue donation. The site also lists bilingual support groups.
Recommended reading
Many books can be checked out from the Family Resource Center at Children’s or found at your local library or bookstore.
The Inside Story: A Kid’s Guide to Kidney and Liver Transplants
Karen Crowe
This guide is written to educate kids on what to expect before and after surgery.